April 28, 2011
April 20, 2011
As days go on, I start to think that maybe I'm getting better. I don't spend so much time crying like I used to, and the overall feeling in my gut has improved. I know it's not the most accurate way to measure all this, but for me, it's the only way I know how. Sometimes I feel guilty or upset that I've gone a certain amount of days without crying. Other times, I wish to cry, but I can't force it to come out. And then there are times when, all it takes is a good ol' cheesy movie about a girl who gets her arm chopped off by a shark, or a story of a heart transplant on Oprah to really get my tears flowing again.
In the beginning, it seemed like I spent most of my time crying, or feeling like there was a knife going in my stomach. So, to have a few breathers in between is a nice thing. However, there are always those reminders waiting to jump out at me, when I am certainly not in the mood for them.
For example: The other day a lady said to me, "It's hard having kids...". What was I supposed to say back to that!? "It's also pretty hard losing a kid!" Deep down inside, though, I felt like I wasn't even being viewed as a mother, and that's what bothered me the most. There will always be babies every where I go that will also be a constant reminder of what I don't have. And can I blame those people who have living babies? No, but the bottom line remains: It hurts.
Misconception of the ungrieving world: "Kaci is fine being around babies because she acts fine!" It's a very hard thing to tell someone that I don't care to look at their baby. Yes, it's hard for me to tell people a lot of things, thus the reason for this blog. I've told things to Salesi like, "If one more person comes over to my house with a baby I'm going to tell them off!" Have I done it yet? No. It's a mixture of me being a chicken and also trying very hard to be polite.
April 12, 2011
By Kaci Goodrich Uipi
I got my tests results back. The doctor wanted me to come in so she could tell me the results in person. That meant something wasn't good. I was right. The blood work came back positive. I'm a carrier of CGD. This means every time I get pregnant, there is a 25 percent chance my baby will be born with Chronic Granulomatous Disease. This is what Joshua died from. To be more specific, every boy I give birth to will have a 50 percent chance of having this disease. To be blunt: I need to have all girls.
How do I ensure that I will only have girls? Well there is in vitro, which could guarantee me a girl or even a healthy boy, but as we all know, it is very costly. There are also many natural techniques one can do to try to have a baby girl, but I'm not sure if I believe these actually work.
Many people ask me when I'm going to try for another baby. Well now you know one of the many, many things I have to consider before I'm ready. And like my friend
Misconception of the ungrieving world: "Kaci will feel all better when she has another baby to hold, and take care of..." I don't have any idea how I will feel when and if I have another baby because I don't know the future. I will always be grieving my son's loss in some way or another, and as of right now, the thought of having another baby brings anxiety, stress, and guilt.
On a funny note... Salesi asked me if I was going to post anything about my results. I told him, "probably not". He said I should write a post about it and call it, "CGD in the House".